Today I met up with the rheumatologist doctor who helpfully arranged for me to have approximately 750,000 different immune-related and other types of tests a few weeks ago. As I have Raynaud’s Syndrome which can be an immune-related condition, we have been investigating the possibility that I could be having some immune related issues with keeping embryos alive and growing in my uterus.
I really like my rheumatologist doctor, let’s call him Dr J. I wish he was actually my full time doctor, but he is a specialist so I only get to hang with him for special stuff. He went through the extensive (and expensive!!!) test results with hubby and me and tried to play it cool that mainly I’m perfectly okay, but that there are a couple of things I should look into.
What were those things you ask? Well number one is my thyroid. Yes, that thing that practically every other IVF doctor in the world tests before starting treatment. Does my doctor test for this? No. I am furious.
Turns out that my thyroid TSH reading comes in at 8.01. Ideally you want to be at 1.0-2.0 for conceiving (normal is 0.2-5.0). This means that I have hypothyroidism. A quick google will show you that hyperthyroidism is a cause of miscarriage. Oh do you think the IVF doctor might have mentioned that to me after TWO CONSECUTIVE MISCARRIAGES?! No.
Thyroid issues are treatable fairly easily it seems and so off I go next week to chat with an endocrinologist. The list of doctors on my payroll continues to grow!
Then there is a nice thing called Antithrombin III. It’s something all about clotting. A normal range is 260-447. Mine came in at 244 so a little bit low but maybe not super scary low. In any case Antithrombin III deficiency is another cause of miscarriage.
Finally, there are some things called Complement C3 and C4. These are also related to immune stuff. Again, my readings come in below normal suggesting I have a deficiency here. These are also linked to miscarriage.
Anyone noticing a trend here?
So let’s have a recap of things that could be causing my recurrent miscarriages:
- Antithrombin III deficiency
- Low complement C3 and C4 proteins
- Surgery on a fibroid 3 years ago
- My age (37)
- Bad luck (IVF doctor’s diagnosis)
My BFF who is an expert in all things immune-related and pregnancy has been giving me some great advice about what to challenge the doctors on. If there’s one thing I have learned for all of this it is to of course listen to your doctor/s but don’t take everything they say at face value. DO YOUR OWN RESEARCH!!